Tag: Children with autism

Making the Most of Summer Break by Building Essential Skills

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As the school year draws to a close, summer break ushers in a bit of a recess for parents — a hiatus from packed lunchboxes, school runs, and homework.

For families with children with autism, though, summer break can also mean disruption to your routine. It can create a lack of social interaction, and it can mean there are more demands on your time as a parent.

Here’s where you can turn those challenges around. Summer doesn’t have to be a lull in the progress your child with autism has been making all year. All you need is a strategy to leverage summer break to be a time to help your child build essential skills.

That starts with setting clear goals, creating a new routine, and incorporating skill-building into fun activities. But how do you do that?

Look for Structured, Play-Based Programs

The first step is to find a program that can keep your child engaged in social activities. Providers in cities across the country offer structured, play-based social skills programs. These programs are crafted with children in mind, aiming to bolster key skills such as socializing, communication, cognition, and sensory perception — all through the power of play.

These summer programs often take place in play-based, group settings, mirroring the school environment, but with the added benefit of one-on-one support. They foster collaboration and inclusion, often welcoming siblings to join, too.

Building a More Trusting Environment

Next, make sure your child is engaged in the process. In the world of applied behavior analysis (ABA), behavior technicians and behavior analysts lead summer social skills programs and promote group activities that help children build friendships.

Programs group children of similar age and skill level and include age-appropriate games and activities. This helps them to learn and communicate effectively.

You might hear your ABA provider using terminology like taking an “assent-based practice.” That’s an approach that focuses on making sure your child agrees to participate in treatment. Using an assent-based practice, therapists encourage children in the program to step out of their comfort zone and try new things. This approach is person-centered and fosters a safer and more trusting environment.

Staying Active to Prevent the ‘Summer Slide’

The “summer slide” refers to the learning loss students experience during summer breaks. Social skills programs for children with autism can play a crucial role in preventing the “summer slide” by promoting continuous growth and development.

These strategies can turn summer break challenges into opportunities to:

  • Build a consistent routine: A summer social skills program that provides a consistent daily schedule is often comforting to children with autism.
  • Help your child retain skills: By continually practicing social skills throughout the summer, your child can retain and even improve upon the skills they learned during the school year.
  • Encourage peer Interaction: Summer programs offer opportunities for social interaction with peers, which is critical for building friendships.
  • Foster personal growth: Summer social skills programs can boost self-esteem and confidence by providing opportunities for success and achievement.
  • Give you a respite: Summer programs can also provide parents with a much-needed break, allowing you to recharge while knowing your child is in a safe and nurturing environment.

Summer break can be more than just a pause from school. With the right approach and resources, it can be a valuable opportunity for your child with autism to continue their development and build essential skills.

By integrating structured play-based programs into your summer routine, you can foster a trusting environment that encourages personal growth and social interaction, while also providing a much-needed respite for you as a parent.

So, view this summer not as a challenge, but as a chance to fuel your child’s progress, further nurturing their unique potential.

Click here for more ideas on making the most of summer.

A Fresh Approach: Empowering Children with Autism

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Written by Alison Spanoghe, Behavior Analyst, Autism Spectrum Therapies (AST)

When I first started working in a school system with children on the autism spectrum in the early 2000s, my leaders told me to stick to my instructions — no matter what. They told me this would be best for the children in the long run. As a newbie, I followed orders.

Often, though, that approach led to anger, tears, and resistance from the children who needed my help the most. Despite science backing up the “follow-my-orders” approach, it didn’t always feel “right.”

Today, my approach has evolved to something called “assent-based practice.” It’s a model that puts an end to instruction through coercion. It prioritizes the child’s agreement to participate in therapy rather than mandating that they follow orders.

The Old Way: Extinction

If you’re familiar with applied behavior analysis (ABA), you may have come across the term “extinction.” In simple terms, extinction means not reinforcing a previously reinforced behavior. The aim is to reduce the chances of that behavior happening again.

Let’s say your TV remote stops working. After a while, you’ll stop pressing the power button and maybe look for batteries or ask for help instead. The same principle applies to ABA services. If a certain behavior — like screaming — is not encouraged, the child will eventually stop doing it. You could then teach them a better way to communicate their needs instead of screaming.

While that might be good in theory, behavior isn’t always that straightforward. Also, the extinction approach can sometimes lead to other issues, like longer tantrums, aggression, or even distrust toward caregivers. That’s where assent-based practice comes in.

The New Way: Assent-Based Practice

Assent-based practice focuses on making sure the child agrees to take part in therapy — even if that agreement is nonverbal. When a child is actively engaged, that’s one indication that they are communicating that they agree with participating in treatment.

This type of approach involves:

  • Constant check-ins
  • Respecting when the child no longer wants to participate in treatment
  • Adapting the approach based on the child’s response
  • Teaching the child to communicate

The goal of this technique is to equip children with autism with skills that are useful in any situation. It also helps them advocate for themselves and make it clear when they want to say “no.” It’s more of a compassionate way of providing care.

Why Assent-Based Practice?

There are many benefits to using assent-based practice. It can:

  • Build Trust: It helps establish a safe and trusting relationship between the child and the therapist.
  • Promote Expression: The child learns that they are seen and heard. It encourages them to express their feelings.
  • Respect Autonomy: The child’s “no” is respected, promoting their dignity and independence.
  • Enhance Learning: This approach avoids standoffs. It allows more reinforcement of language use and engagement in the session.

Assent-based practice has become a popular topic in ABA services. It emphasizes getting the child’s agreement before continuing therapy. It teaches children to express their feelings. It also respects their dignity and independence.

Therapists can use this approach with any child at any time, leading to faster learning and better rapport with the child. While our understanding of assent-based practice continues to evolve, it is a worthwhile approach to consider because it puts the child first.

Alison Spanoghe is a behavior analyst with Autism Spectrum Therapies (AST).

5 Simple and Fun Imaginary Play Ideas for Kids with Autism this Summer

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By Laura Squiccimara, BCBA, MS

Assistant Clinical Director, Northeast Region, Behavioral Concepts (BCI)

Are you dreading the upcoming summer break because you worry about your child not having enough to do at home? For parents and caregivers of kids on the autism spectrum, that’s a common worry.

Long school breaks can disrupt your family’s routine, and children with autism often rely on schedules and predictability to feel secure and comfortable in their environment.

Changes at the end of the school year can be difficult to manage but have no fear. We’ve gathered simple, practical ideas for keeping your child engaged this summer. But first, let’s create a sense of consistency and structure.

Planning ahead and creating a schedule with specific activities for each day can help your family maintain a routine. By doing this, you’ll create a balance between structured and unstructured activities.

You can incorporate sensory play, arts and crafts, and fun outdoor activities into your summertime routine. Here are five ideas you can add to your list:

1. Mountain Explorers

This activity requires minimal preparation. To get started, gather some pillows, blankets, and cushions to create “mountains.” Help your child line up and stack the items in a way that resembles a mountain range.

Once your mountain range is complete, grab your gear and go exploring. This is a great way to encourage your child to use their imagination and pretend they’re hiking, camping, or climbing to the top of a mountain peak.

Practice taking turns, following someone else’s lead, and discussing your expedition with your child. You can even create lasting memories by snapping some pictures and placing them in an album that you can add to all summer long.

2. Dress Up

Dressing up is a classic activity that never goes out of style. It’s an excellent way to use old clothes* you might otherwise donate. To get started, gather your well-loved shirts, pants, hats, shoes, and accessories, and lay them out on a table or bed. Now you’re ready to use them in a game of dress-up.

Have your child pick an outfit and then play out different scenarios or even have a fashion show. You also could have a contest to see who can come up with the silliest, most mismatched outfit. This is a great way to work on daily living skills. Your child can practice putting on and taking off clothes, choosing appropriate clothing, and even learning how to fasten buttons and zippers.

*Keep in mind that some children with autism have sensory issues with clothing. You know your child best and what types of clothing materials they prefer. This could also be a way to introduce new materials that your child might like.

3. Pots and Pans Band

Start your very own home band this summer. To do this, all you need are some common household items like pots, pans, and spoons.

Explore different utensils such as wooden spoons, plastic spoons, and rubber spatulas to see how the sounds and tones change with different materials.

Encourage your child to create new beats and follow along with rhythms that you create.

You can challenge your child to a game to see who can repeat the longest beat, play the most recognizable song, or try to play as loud* or softly as possible.

This activity not only encourages creativity and imagination but also enhances important cognitive skills such as pattern recognition, memory, and fine motor skills. So, gather some pots and pans and let the music-making begin.

*Again, every child with autism exhibits different sensory sensitivities to sound. Your child might not enjoy this activity due to sensitivities, and that’s okay. Or, if your child seems interested but is sensitive to sound, they can try wearing headphones.

4. Hometown Restaurant

Hometown Restaurant is a fun and exciting activity that lets your child use their imagination while learning important life skills.

To start, gather some kitchen utensils, plates, bowls, cups, and pots and pans to create an in-home restaurant. You can use play food or gather simple no-bake ingredients so your child can create snacks and meals for the family.

Help them take orders, gather ingredients, “cook” their meals, and serve them to family members. They can even practice cleaning up when finished (wink wink).

Hometown Restaurant enhances creativity and improves important life skills, including problem-solving, communication, and social skills. Put on your aprons, and get ready for an unforgettable dining experience.

5. Box City

Here’s a way to put your delivery boxes to good use. Gather boxes of all shapes and sizes and help your child cut, glue, tape, stack, and arrange them however they like.

If you have big boxes, you can even create a fort. Otherwise, create a town or city for your child’s dolls, action figures, or favorite stuffed animals.

Try taking turns as the architect and builder to practice following directions and taking play suggestions. This activity presents endless opportunities for your child to ask for help, problem solve, and work together.

Boredom Is Your Imagination Calling to You

Refuse to be boring. Teach your child to use their imagination with activities that will keep them engaged. These activities promote creativity, imagination, communication, and problem-solving skills.

With these activities up your sleeve, your child will have a summer filled with adventure, learning, and fun. Get ready to watch your child grow in ways you never thought possible.

Laura Squiccimara, BCBA, MS, is the assistant clinical director of the Northeast region of Behavioral Concepts (BCI). BCI is part of LEARN Behavioral, a national organization dedicated to nurturing the unique potential of children with autism.

10 Tips for Navigating the IEPs

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The Outcome of your IEP process relies on you…

One of the most important discussions parents can have with their clinical team is about the goals they have for their child as they grow into adulthood. Most parents grapple with finding the time to think about their child’s long-term future when they are facing the daily needs of mealtimes, sleep schedules, or having a successful play-date. However, as tough as this discussion is, it is critically important to start this conversation early because the foundational skills that will enable your child to function well as an adult are taught and acquired during childhood.

A significant part of a child’s development will be determined by their school environment, academic placement, and the academic curriculum that guides their learning. A child’s initial Individual Education Plan (IEP) is critical. This important document will lay the groundwork for the types and level of services that a child will receive throughout their academic years. It is essential that parents put sufficient time and effort into preparing for their first and subsequent IEP meetings.

An Individual Education Plan (IEP) is a legal document that is developed for every child eligible for special education. This plan contains a statement of a child’s present level of functioning in terms of performance, educational needs, goals, levels of service, and measurable outcomes. The first IEP meeting is typically held before a child transitions into preschool or as soon as a child is identified as having a special need and determined eligible for special education services. An IEP meeting can be held at multiple times during the year: after a formal assessment; if a child demonstrates a lack of progress; or if a parent or teacher requests a meeting to develop, review, or revise a child’s current IEP.

There are some important steps that parents should consider when beginning the IEP process. We have outlined some of the most important ones for you here. The following guidelines can help you prepare for your first IEP:

  1. Understand the IEP Process and Know Your Rights. It is of paramount importance to read up on the IEP process, become familiar with IDEA (Individuals with Disabilities Education Act), and understand your rights as a parent. In addition to studying the law, many parents seek advice from an advocate and network with well-informed parents who have first-hand experience with the IEP process in their school district.
  2. Make All of Your Requests in Writing. All requests should be made in writing to create a documentation trail that provides a history of the child’s academic needs and requests to the school district (e.g., requests for an IEP meeting, an assessment of any kind, or a classroom placement recommendation). It also allows you to state your requests in your own words. In addition, ask the IEP committee to record these written requests as part of the minutes in an IEP meeting. The IEP committee can accept or deny these requests. If the committee denies the requests, then they must follow the procedural safeguards in IDEA and provide written notice of why they are denying your request. If the request is not documented in writing, the school district is not required to provide the service. (Be Familiar with Prior Notice of the Procedural Safeguards (34 CFR 300.503))
  3. Obtain Independent Assessments Ahead of Your IEP Meeting. The school team should not be recommending nor denying services without an assessment to evaluate the need for that service and neither should parents. You will want to request, in writing, that your child be assessed before the IEP meeting is held. Ideally, if all the necessary assessments are conducted prior to the IEP meeting, then the recommendations for treatments can be discussed during the IEP meeting. Be sure to request copies of the assessments, progress reports, and proposed goals in advance of the meeting, in order to have ample time to review and be fully informed during the meeting.
  4. Organize All of Your Records. Parents should have all of their records on hand and easily accessible during IEP meetings. Create a system of storing and updating all information that makes sense to you and that makes it easy for you to find the information you need.
  5. Observe the Classroom. Ask to observe any classroom where your child is being recommended for placement, so you can better understand if it would be a good fit. If for some reason the school will not let you observe, have a professional who is familiar with your child observe the setting.The law states that the team must start with the Least Restrictive Environment (LRE) which is the general education classroom as the first option and work towards a more restrictive environment only as necessary as needs come up that cannot be met with supports and modifications in the LRE. Therefore, placement should never be decided upon before the child’s goals and objectives are concluded. (see item #7 for Goals and Objectives)
  6. Formulate a list of Questions before your IEP. In advance of the meeting, prepare a comprehensive list of questions (a very long list is completely appropriate). During the meeting, assign someone on your team to take notes and write down answers to all of your questions. This allows you to focus on the conversation. A tremendous amount of information is exchanged at IEP meetings, and it can be overwhelming to absorb it all.
  7. Make Sure Goals and Objectives are Progress Oriented. Goals and objectives are one of the most important elements of an IEP. If the goals and objective are not written in a manner that is observable and measurable, one cannot determine if a child is making progress. Without this, the school can claim that a child has made progress without producing actual data to evidence the skills gained. In addition, the goals and objectives will specify what a child needs to learn in that academic year. This is the critical time to think more long-term. Will these goals serve where you want your child to be two years from now? Five years from now? Are they laying the foundation for the necessary skills that your child will need as an adult to live the most independent life he or she can? Get input from members of the team that work with your child before the meeting; ask for their opinion of your child’s progress and needs.
  8. Be the Host, Not the Guest. Since IEP meetings are held at the school district, parents typically feel like a guest at their child’s IEP. However, since the IEP meeting is about your child, parents can create a more personal atmosphere. For example: by providing snacks, pastries and light refreshments, you can put yourself in the position of host of the IEP meeting. Another idea is to bring a photograph of your child and place it in the center of the table to remind the team who and what the meeting is about- providing services to support this specific child in attaining his or her highest potential.
  9. Never Go Alone. The support of a family member, uncle, husband, friend, advocate, cannot be overstated. The IEP process can be  stressful, tiring, and sometimes overwhelming. Parents often share that having someone else in the room to support them, take notes and offer reassurance makes a huge difference. In some instances, parents obtain professional support from advocates or special education attorneys who specialize in the IEP process.
  10. Disagree Without Being Disagreeable. Once the team has made their recommendations and concluded the IEP, parents will be asked to sign the IEP document. The IEP document allows for them to sign that they were present at the IEP but that they do not agree at that time with the recommendations. This is a good option to exercise at the end of the meeting. It gives you the opportunity to take the IEP home to review later and have the option to request changes. This can be done in a very respectful way, allowing you time to make the best decisions that are best for your family.As a parent, you are a vital part of your child’s IEP team. You are your child’s best advocate and the person who knows what’s best and most appropriate for him. With the correct information and support you can create a comprehensive and suitable roadmap for your child’s future.

 

– Michelle Stone, M.S., BCBA. Based on an interview with David Wyles- a Parent’s Guide to the IEP.